New report | Metastatic breast cancer cases double previous estimates

Australia now has clarity it has never had before: 20,950 Australians are living with metastatic breast cancer — more than double what was previously understood. This new national estimate exposes decades of undercounting, underestimated need, and under-resourced care.

BCNA’s report, Invisibility to Influence: Progress on MBC Data Reforms in Australia, explains how they arrived at this breakthrough, what it reveals about our health system, and — most importantly — what must happen next. It draws on the AIHW’s world-first methodology and tracks progress made since the release of BCNA’s 2023 MBC Data Roadmap, offering a clear roadmap from recognition to reform.

The successful reporting of national metastatic breast cancer data marks a significant step forward in Australia’s commitment to improving cancer outcomes. It demonstrates how far we have come in recognising and responding to the needs of people living with metastatic disease.

This Report, which aligns with the Australian Cancer Plan and the recently launched National Data Cancer Framework, underscores the importance of high-quality, integrated data and equitable cancer outcomes for all Australians. Data will continue to be vital to achieving equity in cancer outcomes. Comprehensive cancer data enables more inclusive, person-centred care and supports evidence-based policy and planning.

Download or read the report below to understand what this means for care, policy and people living with metastatic disease — now, and into the future.

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