19 Mar 2026

Pan Cancer Initiative: Core Outcomes Set Patient-Reported Measures | Implementation Considerations and Tools

Members based in Australia and involved in a service, registry, research program, or organisation relevant to cancer care, quality measurement, or patient-reported measures are invited to complete this short online survey regarding PROMS and PREMS collection.

The purpose of this survey is to understand how organisations currently collect patient-reported outcomes (PROs) and patient-reported experiences (PREs) in cancer care. Further details of the study are provided in the explanatory statement.

If you agree to participate, you will be asked to complete a short online survey (maximum 8 questions) about whether your organisation collects PRO and/or PRE data and which instruments are used. The survey will take approximately 3–5 minutes to complete. We will not be collecting any personal information or data.

By clicking this link, you indicate your consent to participate in this research project.

Looking for more information?

If you have any questions about the project, please contact: A/Prof Sandra Nolte – [email protected] Dr Tamara Jones – [email protected]

Return to listing